Contact Us - National Organization for Rare Disorders
Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email communications here. …
Rare Disease Research Grant Program | NORD
Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately …
Phenylketonuria - Symptoms, Causes, Treatment | NORD
May 8, 2025 · Learn about Phenylketonuria, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Rare Diseases Support, Resources & Help | NORD
Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific patient advocacy …
Patient Assistance Programs - National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …
Rare Disease Advisory Councils - National Organization for Rare …
NORD supports the establishment of well-organized, high-functioning Rare Disease Advisory Councils in every state. A Rare Disease Advisory Council (RDAC) acts as an advisory body that gives the rare …
Leadership - National Organization for Rare Disorders
NORD’s Leadership Team NORD is uniquely focused on purposefully elevating care, advancing research, and driving policy for the 30 million Americans living with rare diseases and their families. …
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Coffin-Siris Syndrome - Symptoms, Causes, Treatment | NORD
Mar 28, 2025 · Learn about Coffin-Siris Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find
Rare Disease News - National Organization for Rare Disorders
Dec 4, 2025 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.