For decades, I’ve fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day — taking no days off — because no ...
While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.
Growing up, I fiddled with many different instruments … piano, guitar, even cello for a few days. However, there was only one instrument that really stuck with me: the bagpipes. I started playing in ...
On behalf of the undersigned NAIC Consumer Representatives, we offer the attached report examining the impact of federal policy shifts on health insurance access and affordability. The report ...
Dear Majority Leader Thune, Minority Leader Schumer, Speaker Johnson and Minority Leader Jeffries: On behalf of the undersigned patient, healthcare professional and industry organizations, we urge you ...
Today, 27 leading patient, provider and professional organizations sent a letter to Congress to include the Supplemental Oxygen Access Reform (SOAR) Act (H.R. 2902/S.1406) in an end-of-year ...
The Cystic Fibrosis Foundation seeks to attract and develop junior faculty who will establish research careers in cystic fibrosis. The primary purpose of the K-Boost Award is to provide supplemental ...
I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
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